Be The Hope Foundation
Be The Hope Foundation
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About Us

Be The Hope Foundation gives families facing immune mediated neuropsychiatric disorders such as PANS and PANDAS and Autoimmune Encephalitis the resources, advocacy, and hope they need to heal.

Our Story

Founded in 2022, Be The Hope Foundation was created by a mother of a PANS child who spent 11 years advocating for her child. She unable to obtain insurance coverage for IVIG. Her vision was to ensure that every child had access to IVIG and that no parent had to walk this difficult journey alone. In 2024, she worked to pass HB24-1382 in Colorado mandating IVIG be covered by insurance.

Be The Hope Foundation Provides

Financial assistance for immuno-modulatory treatments such as IVIG, Rituximab and PLEX (therapeutic plasma exchange) and travel to IVIG care

Advocacy for insurance coverage reform at the state and national level

Parent support groups for families navigating PANS/PANDAS

Scholarships for college-bound young adults with PANS/PANDAS

What Is PANS/PANDAS?

PANS and PANDAS are neuroimmune disorders that strike children after a strep infection or other illness. A misdirected immune response triggers sudden, severe OCD, ADHD, tics, and other psychiatric symptoms. For families, the change in their child arrives fast and upends daily life.

of children receive their diagnosis between ages 4 and 13

of cases follow a strep infection

Some treatments cost $5,000 to $20,000 per round and insurance often denies coverage

Helping Families Access Life-Changing PANS/PANDAS Treatment

Too often, families navigating PANS/PANDAS are left to fight for answers alone.


They spend months—or even years—seeking multiple medical opinions, paying for therapies that do not address the underlying cause, and searching for providers who understand and can treat their child’s symptoms.


Even after receiving the correct diagnosis, families face another major barrier: treatment. Physician-prescribed immunomodulatory therapies may offer a path forward, but insurance frequently denies coverage. One round can cost $5,000–$20,000, and many children need multiple treatments.


By the time families find Be The Hope Foundation, they are often emotionally exhausted, financially strained, and running out of options. We meet families where they are and help change what comes next.  We give HOPE!  


Through financial assistance for prescribed treatment, we help ensure cost does not stand between a child and the care they need.

PANS/PANDAS Treatments We Help Families Access

Intravenous Immunoglobulin (IVIG)

Intravenous Immunoglobulin (IVIG)

Intravenous Immunoglobulin (IVIG)

IVIG delivers concentrated, purified antibodies from healthy donors directly into the bloodstream to help regulate the immune system. Doctors recommend it as an effective PANS/PANDAS treatment for moderate to severe PANS/PANDAS.

Rituximab

Intravenous Immunoglobulin (IVIG)

Intravenous Immunoglobulin (IVIG)

This monoclonal antibody infusion targets and depletes the B cells that produce harmful autoantibodies, offering a powerful option for severe or treatment-resistant PANS/PANDAS cases.

TPE (Therapeutic Plasma Exchange)

Intravenous Immunoglobulin (IVIG)

TPE (Therapeutic Plasma Exchange)

Also known as plasmapheresis, TPE separates and removes antibody-laden plasma from the blood. It filters out the “bad antibodies’ from the child's blood. Doctors may prescribe  this hospital-based procedure to deliver relief during severe neuropsychiatric flares.

Every Grant Creates Life Changing Impact: Brynn's Story

Fourteen-year-old Brynn’s life changed almost overnight, shifting from the routines of teen life into a sudden, overwhelming health crisis. After searching for answers, her mother, Devon, finally received the diagnosis: PANS/PANDAS. But finding a name for Brynn’s condition was only the beginning—the treatment she needed was financially out of reach.


That’s where Be The Hope Foundation stepped in. A financial assistance grant helped Brynn receive her first IVIG treatment.


Within just one week of her first infusion, Brynn began reclaiming her life. She returned to school full-time, celebrated her 16th birthday, and rejoined the swim team.


Your support can help another family access treatment, find hope, and move forward.


“I will never be able to fully explain what it meant. We went from being in a complete crisis... to living practically normal, happy lives.”— Brynn’s mother

Be The Hope Foundation For Families

Apply for a grant for PANS/PANDAS treatmentJoin IVIG Coffee Talks to get support from the PANS/PANDAS communityFind IVIG ProvidersAccess resources about PANS/PANDAS treatment

Be The Hope Foundation For Supporters

Make a donation to support families facing PANS/PANDASLearn more about PANS/PANDAS Host an impact gathering

Be The Hope Foundation

844-KID-HOPE | support@bethehopefoundation.us

Copyright © 2026 Be The Hope Foundation - All Rights Reserved.

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